Showing posts with label chemo. Show all posts
Showing posts with label chemo. Show all posts

Thursday, May 21, 2015

Today marks the countdown to 7 more treatments!

Demanding full eviction of this stupid cancer and it's nasty side effects. Yesterday and the day before, I was sick as a dog  and my nurse grounded me to the main floor. I am typically a good patient and listen to most of the rules. Both days, I listened and obeyed ALL the rules. There are days you simply have to do that. I have noticed that the sicker I get or the more tired I get the less cognitive I am. I know this happens to people who have not had brain surgery or cancer, but in my case I am really, really out of it.  I let them wheel me around the hospital when I went in on Tuesday  for my labs and radiation. First time I had been in a wheelchair since I left Fairlawn Rehab Hospital. You would think it might spark some anxiety of some kind, but no. That's how cruddy I felt.

Which brings me to my next point. What does someone who is on a ketosis diet eat when they aren't feeling well? My favorite thing to eat is the Chai Spice Mug Cake. The closest thing to a grain based texture. I supposed if you poured it into an microwavable oblong small loaf pan it could be sliced into slices and toasted now that I think about it.

Chai Spice Mug Cake
1 large egg
2 TBSP room temp butter
1 TBSP Stevia
7 drops liquid stevia
1/2 tsp baking powder
4 TBSP almond flour
1 TBSP heavy cream
1/4 tsp cinnamon
1/4 tsp ginger
1/4 tsp cloves
1/4 tsp cardamon
1/2 tsp vanilla

Mix it all together well, and microwave for 70 seconds in a mug, microwave safe oversized bowl, or and microwavable container you fancy!

Tastes amazing with freshly made whipped cream, and used as a dessert, or replacing oatmeal in the morning, you can still use whipped cream, after all it is someone's birthday somewhere, right?

The Universe is taking care of me ever so gently. The other day when my mother was visiting we went to WalMart to look for something orange (to complete the colors of the chakras) to put on the deck for the healing garden she made me during her visit. When I run into my good friend Kelly, who works there. We are chatting for a few minutes and I commented on her earrings and how pretty they were. They are the sparkly angels. She took them off right there and put them on me and said "You needed your angels, that is why I wore these today, I was supposed to run into you." Kelly, I wear them always now, I only take them off during radiation, because I have to, but they go on first when I am done.

The old me would not have been so attached to particular items of jewelry. It just wasn't a sentimental side about me that I possessed regarding jewelery. I mean I liked it and I would remember fondly when I wore something who gave it to me. Those types of things. But nothing that I would not take off, besides my wedding ring when I was married. The new me, however is very attached to certain items. The embroidery floss friendship anklet Christine made me last fall at her house as we sat in her room. I was firm in the hospital that they leave it alone. There was no reason for them to touch it. Before that we were mother daughter, after that day, we were friends too.

I have my bracelet from Israel, that my friend Grace brought over there. She took it to all 14 stations of the cross and had it prayed over specifically using my name. She put my name in the Wailing Wall. Every day she was there, she texted me and told me where "we" were going today. So, I was sort of able to go to Israel, even if only for moments, while I was in the hospital. It was a good vacation for me, I could go to the text at any time during the day and imagine Grace and I with hooked elbows, hats and sunglasses exploring the Holy Land together. When she got home, she came to see me the first weekend I was home, and brought the bracelet to me, showed me many pictures of where "we" went and put the bracelet on.  It does not come off.

The new me also wears a beautiful necklace, even during treatment. The technician figured a way for me to keep it on. This comes from my dear friend, Suzy. We have been friends for a long time. Although we do not live close, our hearts are knit together with love, laughter and experiences. We had our children on alternating years, so my youngest two are stepping stones to her two children. She was in my wedding. We learned a lot about cooking together with our trials and errors. Suzy sent me the most beautiful purple (light), swarvarski (sp?) crystal and silver necklace with a charm of a dove and the word strength. I cried when I opened it. Heck, I almost cry at it everytime I look at it.

My other bracelets I will not take off right now are three Alex and Ani bracelets. One of them is a crown! Not even a tiara, a full blown crown. This came from my friend Deb. Deb and I met through our mutual friend, Maura. Deb and I are swearing sisters when we all go out together. They put us two close together at the table, cause we call a spade a spade, and giggle all the time while we are doing it. That's right, Mother Fucker, I got the crown, I am QUEEN of this domicile and I am ordering you OUT! You heard me, OUT!

The other is a phoenix that my mom had sent me last summer to encourage me to rise out of the ashes and recreate myself. Now is the most poignant time to hold onto that image. The third is a heart, also from my mom, kind of like her being there to hold my hand and keep me calm while I am on that radiation table. I fucking hate that mask, but only 7 more days.

My last bracelet comes from Christine as well. She gave it to me this past Christmas. It is one of those highest and lowest point bracelets. It has water from Mt. Everest and sand from the Dead Sea. It is supposed to provide you with a sense of balance and harmony. I look at it when I am feeling gross and remember that this is a moment in time. It will pass. There are so many more good times before and yet to be had and stories to be told.

Look for miracles, they are all around you.


Sending much love, peace and light
Cindy

Friday, May 8, 2015

Hey There...

Been a very interesting week here in the Healing Home as I call it. I have created as peaceful of an environment as I can to encourage healing.

I have been nauseated and had a constant migrainish headache that would not go away. I had to pull out all the stuff in my arsenal, and still, was feeling punky. When I saw the doc on Wednesday, he tweaked my meds that he had tweaked the week before. Today, I woke up feeling better. Hooray! The other little thing MoFo threw at me this week is my hair falling out by the handfuls, and not just where they are radiating. It feels like someone is constantly pulling my hair all over my scalp. I cut my hair last night to shoulder length, 6 inches off, hoping the extra weight loss of hair might calm things down a bit.


On the bright side, it is sunny, there is no snow, it is Friday, I am 15/30 treatments down after my treatment this morning, I am alive, I am home and I am with my pets. Yesterday, Christine surprised me when I was waiting for the cab. She dropped by real quick with some potted Gerber Daisies for me. The perfect size to put on the little table next to me when Henry and I sit on the front porch. They add that perfect little spring pop of color right next to me. I am also enjoying watching the birds come to the bird feeder out in the back yard. The cats love it too, it is cat tv for them.

So, the ketosis diet continues. It is not difficult to maintain, or stay on at all. I admit, I did fall off the wagon last night. Someone, I don't know who, but I know for sure it wasn't me, left a half eaten container of Ben and Jerry's Phish Food in the freezer. Now, everybody knows when you are having a super sucky day, Ben and Jerry are some of the best friends a person can have. Needless to say to who ever left the container in there, it is gone, but not wasted, worry not! Ben and Jerry and I had an awesome reunion. Thank you benevolent anonymous person.

But back on the keto wagon I go today! Now, I have been making some recipes from what I find on the internet, and some, I make on my own, or some I look at on the internet, and think, (yes, I used the word think) I could make it taste better, so embellish away I begin. It is good to be able to slowly get my skills back as far as speed goes. And, I can have two pots on the stove, or one pot and something in the microwave or oven, at the same time! Not something I was able to do when I first came home. One pot meals were my thing.

I made some Pad Thai this week using spaghetti squash.It was not hard to make. If a woman  who had brain surgery and is undergoing radiation and chemo treatments can make it, anyone can make it, it is not difficult. It was so good, the first and second time, but it makes a lot so by the third time, I got kind of tired of it. I threw in a stripped, cooked chicken breast as well. And I did not add one of the heads bok choi, and doubled the sauce. I would triple the sauce to make it more like the original Pad Thai, and the peanuts on top and the cilantro really add to the flavor of the dish.  I think the recipe could easily feed a family of 4. So, remember all my hints when you go to the link to make this recipe. http://paleogrubs.com/spaghetti-squash-noodle-recipe

For you vegetarians, add the extra head of bok choi, but still triple the sauce.

Well, off I go to fry MoFo! Damn the torpedos! Tawanda! Burn, baby, burn!



Wednesday, April 22, 2015

I am a glass half full kind of girl. Always looking for the silver lining. First things first, it is Wednesday and it is time to tell Mother Fucker to take a long hike off a short pier and never return. Remember team, we are wearing purple on Wednesdays.

Awesome things that have happened since I started chemo and radiation. One: my oldest son has these friends who used to be over at the house all the time when they were in high school. Turns out, their mom is one of the nurses who draws my labs. I get an honest to goodness, genuine, love hug every Tuesday. Thanks God, for taking care of that for me. I have not yet found the medical marijuana that I am seeking. However, I did find some stuff from a medical grower that really does help with the headache and nausea at a much faster rate than 45 minutes to an hour waiting to see if it works. Still seeking the tumor killing stuff, I have not given up. Super Lemon Haze and Terry Sheppey are the two tumor killing strains. Other strains that are very helpful are Grape Ape and Wi-Fi. If you know anyone that might be able to get these specific strains, please put them in touch. I get to see my son, and meet his fiance. She is a very nice young lady, they seem very happy together, and comfortable. I feel bad that I have to meet her at such a trying time. The sun has been shining. No more snow, I was beginning to wonder if I was in the movie Groundhog for awhile, every day seemed the same.

I am getting stronger, I can make it to both corners now when I go on a walk.I think the food diet helps, and filling the protein gap and strong nutrients. Hoping to push past that marker and make it around the block by next week. Small goal, to most. Huge to me. If you happen to see someone physically struggling or moving slow, offer them encouragement or assistance in my name please. They are doing the best they can, pay if forward.

My right leg has started to have spams again. It bothers me. I will tell the nurse this morning. I will contact the neuro-oncology doc this morning and tell them and see what they say.

Meanwhile, Die, Mother Fucker, Die!

Sick and tired of cancer already


Friday, April 17, 2015

Day three full assault

So, I tried creating a playlist, power songs to inspire me while I undergo radiation. I went to my old playlist and for some reason, I can't open it. I don't know how. Then a friend came over and said, "well it is a new battle, maybe the universe is telling you it is time for a new playlist?" Wise, grasshopper. And then I remembered, "hey, I can use Amazon Prime" and download free music there and make a playlist because the hospital has wi-fi.(Big deal to remember something I just learned, look at me go.) i pick out my playlist, starting with Alicia Keys, Super Woman, followed by Girl on Fire - a little radiation humor. The techs looked at me like I was morbid when that came blasting out of my ihome speaker.  So, right up until I walk into the radiology room, I have service, then kaput.Turns out as long as you have service you have your Prime Library available to you, but not on your device, you have to buy those songs for that to happen. Silly girl.  I have been forced these last two days to focus on the following two mantras during radiation "Die Mother Fucker, Die" and "Cells, heal yourselves". I have been so hyper focused on those two mantras that I come home exhausted and need a nap, which is throwing off my sleep schedule at night. Which leads me back to my original problem, creating a playlist that I can listen to while getting zapped that I have already paid for the music or it is on my computer. Once I figure this problem out, I am going to figure out how to get pictures from my phone to my blog so I can start showing you all how I am cooking my way out of this friggin situation and give you recipes to boot. 

I can't be off at night, cause I need to get up in the morning in time to do all my stuff and fit in all the home visits before I go to battle. Other than the battle weariness, I am doing okay. The ketosis diet is going well. I follow the menu exactly, food still tastes good, and I am eating regular portions.The chemo has helped cut down the steroid munchies, and the medical marijuana helps the appetite stay in balance, as well as assisting in nausea and headaches. I am looking for a particular strain that has been shown to obliterate the type of tumor I have in combination with radiation and chemo This has not been done without the use of all three. I have seen peoples scans. Typically only, growth is stopped for awhile and then you need more treatment.  I have my medical marijuana card but there are no dispensaries in Mass yet. I cannot get it delivered legally from a dispensary out of state. If you think you might be able to be of assistance, please contact me directly, thank you.

Okay, gotta get ready to rumble. Do my exercises before I go, shower and all that good stuff. 

Tuesday, April 14, 2015

This is a cross post from my caringbridge page, kind of says everything I need to get out for right now.

Tonight, I start chemo. 

The war is on. 

 Raise the war cry! 

Words are powerful. Very powerful. Thought and intent are also very powerful. Through the ages, people have used words when making a proclamation, whether it be in love, loyalty, forgiveness, friendship or war. 

Brain cancer needs an army to fight. I am leading the charge and I am asking each of you to please suit up and join me. On Wednesday, April 15th at 2 pm EST, please be wearing purple and raise your war cry against this brain tumor.Your war cry can be a prayer, http://biblehub.com/joel/3-9.htma .In terms of realism, this has some ground as traditional and even some current practitioners of martial arts hold the belief that accompanying statements and/or vocal noises alongside execution build up their chi, thereby increasing the power and efficacy of their moves and techniques. Put less spiritually, saying a phrase at the right time during an attack ensures proper breathing. A call used for this reason is known as a kiai. The naming of attacks also served a more practical purpose as many martial arts schools, Chinese ones in particular, used to be secret societies. The passing down of techniques was done orally and giving them esoteric names often facilitated this transmission. In addition, kiai has the potential to startle the opponent and give you an opening. (tvtropes.org) I personally will be using a more Bruce Willis, Die Hard approach, "Yipee Kai Yay, Die Mother Fucker Die". Not very lady like, whatever, this is war and I have had enough cancer in my life already.  My girls picked purple, I don't know why, but Wednesdays are purple days and it just works. I am going to do the first battle alone. I will reassess after the first battle. But I feel like I need to face this one on one for the first time. I am going to "put up my dukes and get down to it". There is only room for one of us in my head, and I am not leaving.  

To continue the war cry, the treatments are Monday through Friday at 11:15 EST for the next 6 weeks. The first one is the only one scheduled for 2. And we wear purple  on Wednesdays.  

Tuesday, April 7, 2015

More Introductions

Today, I was fortunate enough to be fitted with a nifty new head piece. For my tiara crowd, you are not getting one. It was a bit unnerving, a lot unnerving actually. But what seemed to get me through today was the mantra of Die, Mother Fucker, Die. That is what I have named my tumor, Mother Fucker. I have never really cared much for the saying as it is, but in this particular case, I think it is rather appropriate.

By the time I arrived home, I thought my head might explode. Just a lot to process. I made myself a cup of tea, burned some sage, did some yoga, and then the pt guy, Fran came. I rode my bike, we went for a walk, one house further than I did yesterday. Progress. I'll take it.

The ketosis diet is working out really well. I feel good, the recipes have been tasty, and I have been full, which is saying something when you are on steroids. It is nice to be in charge of something again, what I put into my body. Tonight's fun discoveries have been fried cheese and tumeric tea.

Queso Fresco (fried cheese)
Ingredients - 1 lb. Queso Fresco (or Paneer Cheese if Queso Fresco is not available) - 1 Tbsp. Coconut Oil - 1/2 Tbsp. Olive Oil
Instructions 1. Cut cheese into cubes, or thin rectangles. 2. Bring 1 Tbsp. coconut oil and 1/2 Tbsp. olive oil to high heat in a pan. 3. Once the smoke point hits, add your cheese. Let it cook until browned on one side and then flip over and do the same on the other side. 4. Remove from pan and drain excess grease on a paper towel.

and

Tumeric Tea https://www.youtube.com/watch?v=QGgF1cnKdcs

Today was not the easiest, but it wasn't the hardest either.

Meanwhile, Die Mother Fucker, Die.


Sunday, April 5, 2015

Introductions first, at least that was the way things used to be...

Hi, I am Cindy.

I am just about 50 years old, divorced and live with my little dog, Henry, and my two cats, Otis and Willie. My daughter thought Willie was a boy when she proudly brought him home to me, and then moved out 8 weeks later, leaving me with the kitten, who turned out to be a girl kitty. That type of stuff happened pretty regularly for me all my life, so that didn't really through me for a loop.

What through me for a loop was February 27, 2015. The day I found out I had brain cancer. Very surreal. Brain Cancer. That's rare, or so I thought. Actually, there are 150 different types of brain cancer. Over 600,000 people live with a brain tumor in the United States. Yep, that word back there was live. Remember that word, I will ask you for it later. Neurology humor

Turns out my tumor is rare. Not incurable, but rare and feisty. I have Abnormal Olgioastrocytoma, grade 3. I had surgery to remove a large portion of the tumor with very little residual damage. I had already lost control of my right leg below the knee, but continue to exercise, walk and stretch it as much as possible. There is some damage to the right arm, might be more of a favoring or protecting, but I am reteaching myself to use it and have not slipped so far away that it is not an attainable goal to regain full use of the arm again.

I am attacking on all sides. Surgery, chemo, radiation, nutrition , prayer and complimentary therapies.

Pre Brain Cancer Ass Kickin Princess Warrior, I was a personal chef and a personal care attendant. I had started my own personal chef business and it was taking off. I loved cooking for people. I will use that same love, care, and concern that I used for each of my clients into my cooking myself back to health. I will be following the ketosis diet that has been found highly effective in stopping the growth of the type of tumor I have in my brain. For more information on that here is http://www.cbn.com/cbnnews/healthscience/2012/december/starving-cancer-ketogenic-diet-a-key-to-recovery/


My job now, is to get better. So what was that word I asked you to remember?

Live, that's the word. And that is exactly what I intend to do, live.